Lifestyle

Continuing the search for a mother’s 7-year-old son’s life-saving match


A Butler County mother has been working to spread the word about finding a match for her 7-year-old son since October 2021, when she learned the boy had an autoimmune disease. rare affects only one in 1.6 million people. shared her story of both fear and hope for her son, Jax Ramirez’s battle with IPEX. The only possible cure is a bone marrow transplant, and out of the millions who applied to donate, none were a match for Jax. “For people of color, it’s hard to find someone just because of the lack of diversity in funding,” Ramirez said. “We had to find the right person while Jax was healthy, and that proved to be more difficult than I thought it would be, but I’m not going to give up hope,” Ramirez said. organized many fundraisers and helped nearly 4,000 people apply to become potential sponsors. “Our mission is not only to save Jax, but to save everyone else. Eighteen thousand people today are looking for their perfect life-saving outcome,” said Ramirez. To apply, text “JAX” to 61474 and a cotton swab will be delivered to your home. You can never match anyone who needs blood or bones. a donor, or you can save a life. “I wake up every day and see him turn around and smile, but all in my mind, I know that can take away from me right then,” Ramirez said. For details on future live sponsored events, follow “Be the Match for Jax” on Facebook, Instagram and Tiktok.

A Butler County mother has been working to spread the word about finding a match for her 7-year-old son since October 2021, when she learned the boy had an autoimmune disease. rare affects only one in 1.6 million people.

This Mother’s Day, Missy Ramirez shared her story of both fear and hope for her son Jax Ramirez’s battle with IPEX.

The only cure is a bone marrow transplant, and out of the millions who have signed up to donate, none are a match for Jax.

“For people of color, it’s hard to find someone just because of the lack of diversity of donors,” Ramirez said.

With the uncertain status of the illness, Missy said they had to move quickly.

“We had to find a match while Jax was fit, and that proved to be harder than I thought, but I’m not going to give up hope,” Ramirez said.

Over the past 7 months, she and her family have organized numerous fundraisers and helped nearly 4,000 people apply as potential sponsors.

“Our mission is not only to save Jax, but to save everyone else. Eighteen thousand people today are looking for their perfect lifesaver,” said Ramirez.

To apply, text “JAX” to 61474 and a cotton swab will be delivered to your home.

You may never match anyone who needs a blood or bone marrow donor, or you may save a life.

Ramirez said: “I wake up every day and see him turn around and smile, but all in my mind, I know that can take away from me the next day.

For details on future live sponsor events, follow “Be the Match for Jax” on Facebook, Instagram and Tiktok.





Source link

news7h

News7h: Update the world's latest breaking news online of the day, breaking news, politics, society today, international mainstream news .Updated news 24/7: Entertainment, Sports...at the World everyday world. Hot news, images, video clips that are updated quickly and reliably

Related Articles

Leave a Reply

Your email address will not be published.

Back to top button