The worldwide annual compliance also focuses on the need to improve patient care and increase research into causes and cures.
; To date, there is no cure for lupus. This will yield better epidemiological data on lupus globally, further supporting the earlier diagnosis and treatment of lupus.
). Lupus means “wolf” in Latin, as the disease was so called in the 13th century because the rash was thought to resemble a wolf’s bite.
Symptoms vary between individuals and range from mild to severe (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
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). Common symptoms include athritis and swelling, fever, chest pain, hair loss, Mouth sores, swollen lymph nodesfeel tired, and the most common red rash on the face (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
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).
There are often periods of illness, called flare-ups, and periods of remission in which there are few symptoms (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
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).The cause of the disease is still unclear. Lupus can be caused by many factors such as hormonal changes, genetics, environmental problems, smoking and Vitamin D deficiency. And so far, there is no cure for this disease (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
Go to source). But it can be treated with NSAIDs, corticosteroidsimmunosuppressive drugs, hydroxychloroquineand methotrexate (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
To the source), but comes with some side effects.
Lupus – A global problem
Lupus increases significantly risk of cardiovascular disease, is the most common cause of death. With modern treatments, about 80% of those affected survive for more than 15 years. Women with lupus are at higher risk but most have successful pregnancies (first✔ ✔Trusted Source
Systemic Lupus Erythematosus (Lupus)
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).
The prevalence of lupus varies from country to country from 20 to 70 people per 100,000. Women of childbearing age are affected about 9 times more often than men. Although it usually begins between the ages of 15 and 45, people of any age can be affected.
Children of African, Caribbean and Chinese descent are at higher risk than Caucasians. The prevalence of disease in developing countries remains unclear.
History of World Lupus Day
World Lupus Day was first created by Lupus Canada in 2004 to raise awareness of this little-known disease that has devastating effects on sufferers and their families. It was created to increase research funding, provide better services to patients, improve epidemiological data, and raise awareness about the disease.
World Lupus Day Sponsored by the World Lupus Federationa coalition of lupus patient organizations around the world, united to improve the quality of life for people affected by lupus (2✔ ✔Trusted Source
World Lupus Day
Go to source). Since then, lupus organizations and scientific discovery organizations around the world have committed to various activities on May 10 each year to raise awareness and educate the community and people. about the symptoms and health effects of lupus (2✔ ✔Trusted Source
World Lupus Day
Go to source).
Things to do on World Lupus Day
There is a list of some activities you can participate in to raise awareness and fund to end lupus (3✔ ✔Trusted Source
World Lupus Day
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):
- Participate in a World Lupus Day social media campaign highlighting the impact lupus has on the body’s organs (3✔ ✔Trusted Source
World Lupus DayGo to source
) - Wear your favorite purple items to raise awareness and encourage others to donate
- Proclaim by lighting a milestone, monument or building that will be illuminated on World Lupus Day in purple in your city
- Share pictures of “truths about lupus” on social media
- Organize an event and fundraise for lupus
- Use hashtags like #WorldLupusDay2022, #LupusDay, #WLD2022 on social media platforms.
- Ask the Government to declare funding for the poor affected by the epidemic
What you need to know about Lupus
- Lupus usually affects the skin, joints, and internal organs such as the heart and kidneys.4✔ ✔Trusted Source
What is lupus?
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) - Out of 10 people with lupus, 9 are women.4✔ ✔Trusted Source
What is lupus?
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) - To treat lupus, use anticoagulantsanti-inflammatory drugs, antimalarial medicinebiologics, immunosuppressants, and steroids introduced (5✔ ✔Trusted Source
Lupus treatment: a guide
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) - 65% of people with lupus say chronic pain is the hardest part about having lupus (6✔ ✔Trusted Source
Impact on daily life
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) - 76% of lupus patients said weariness due to lupus has forced them to cut back on social activities (6✔ ✔Trusted Source
Impact on daily life
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) - 89% of people with lupus say they are unable to work full-time due to lupus complications (6✔ ✔Trusted Source
Impact on daily life
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) - The National Lupus Resource Center provides information and support for anyone affected by lupus, including people diagnosed with lupus, children and adolescents, carers, specialists, and more. healthcare professionals and the public (6✔ ✔Trusted Source
Impact on daily life
Go to source
).
Let’s all speak up together to fight misconceptions about this disease and bring about a better world for lupus patients.
This May 10, let’s all wear purple to show that we are with lupus patients around the world.
Presenter:
- Systemic Lupus Erythematosus (Lupus) – (https://www.niams.nih.gov/health-topics/lupus)
- World Lupus Day – (https://worldlupusday.org/about/)
- World Lupus Day – (https://worldlupusday.org/tool-kit/)
- What is lupus? – (https://www.lupus.org/resources/what-is-lupus)
- Lupus treatment: a guide – (https://www.lupus.org/resources/treating-lupus-guide)
- Impact on daily life – (https://www.lupus.org/und hieu-lupus/impact-on-daily-life)
Source: Medindia
