Rare disease
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News
B.C. expands children’s access to ‘transformational’ cystic fibrosis drug
A week after a BC family went public with a plea for a life-changing drug for their son with cystic…
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Health
World Hemophilia Day Conference 2022
Hon’ble Sh. Mohammed Faizal PP, MP, Lakshadweep, NCP and Hon’ble Sh. Harsh Mangla, IAS, Director, NHM, MoH & FW also…
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Health
Crowdfunding campaign on rare diseases Raise more than 125 billion INR
In a joint statement, ImpactGuru.com Co-Founders Piyush Jain and Khushboo Jain said, “We welcome the government’s efforts to tackle the…
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Health
India’s rare disease policy offers no hope for patients
“According to the data currently available in India, there are around 70 million patients with rare diseases. However, the number…
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Health
World Infertility Day 2022 – “Share your colors!”
that aligns with the needs of researchers toward collaborative work (patients, caregivers, families, and athletes) to promote better success in…
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Health
The control mechanism of a rare disease has been modified!
However, new research in mice by a team at the University of Pennsylvania’s Perelman School of Medicine suggests that exoskeleton…
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